Sunday, March 29, 2015

Naysa and her face.

    As most of you know, Naysa has had some behavioral issues since her strokes in December 2013. Right after her strokes she couldn't move very well... unless it was to beat herself on the face. Over the past year and a half she's been much better about it as long as she has the security of her weighted blanket or wrist weights with her lap pad. Lately she has been rubbing her nose raw, not so much punching her nose like she was before but rubbing it to the point she bleeds either from the rawness of her skin or she gives herself a bloody nose.

    Last night, she bit her tongue pretty bad and we were worried about her choking on blood in the night since she just kept moving her tongue around and bit it again. Ben stayed up until about 2 to keep an eye on her and not long after I heard the alarm from the Sami and sat up to check her to make sure she didn't get out of her swaddle to hit herself or choking. I was up every hour, if not every half. I finally fell into a semi deep sleep and was jolted awake by the alarm, I lean over to check on her and there she is, with BOTH arms out...

Which brings us to this morning.

Her face and arms were COVERED in blood! I got her in the tub and ended up having to use the Nosefrida to get some blood cots out her nose!! :(

I'm really, honestly surprised she hasn't broken it yet and I'm not waiting until she does. On that note, if anyone has suggestions on how to keep her safe at night, I'm more than open to options. Swaddling doesn't work, arm braces don't work and wrapping her up in her weighted blanket doesn't work.

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