Epic Appointment Fail

This week we had three appointments and didn't make it to a single one. Monday was supposed to be the second set of 6 month shots. We got to the doctor's office only to be told that we were at the wrong clinic! We normally go to this office but the last time her doctor was too booked so we saw her at a clinic down the street from us and I could have sworn the receptionist said we would be seen at our normal office next time. So now that is rescheduled for this coming Friday. Thursday was supposed to be an at home visit with vision therapy, the nurse was sick so they cancelled it all together. Friday was supposed to be OT but Ben's flight landed early due to bad weather so we went to go pick him up from base, we left at 1 and thought we would have plenty of time to go straight from there to her appointment but then remembered we live in CA..aka the land of horrible drivers. We weren't going to make it in time so I called when we got home to reschedule. Next week is chock full of appointments and lately I feel like there's just not enough hours in the day. Between the house, dogs, baby, husband and other housewifey duties I am feeling overwhelmed. I feel like I should be spending the whole day working and playing with Naysa, helping her grow and develop but I have other obligations too. I feel guilty but at the same time I know too much tummy time, practice rolling over and sitting up will overstimulate her. Today has just been one of those days and I can't wait for the next 3 hours to go by and call it a night. In happy news, good friends of ours found out yesterday that they are pregnant! It's such a different feeling now when people announce pregnancies than it was before I went through it. I was always excited for them but couldn't really fathom just how extraordinary it really is to be newly pregnant. It such a fantastic yet honestly weird feeling. I told her the only unsolicited advice I will give is to take extra folic acid and a DHA supplement, I know it's annoying when people give you advice when you didn't ask for it so that was my two cents. Then I began to wonder, would any pregnant woman want advice from me? I can say I did this and didn't do that while pregnant but I feel like nothing I say would be taken seriously because my baby didn't turn out "normal" so I MUST have done something to make her that way. Yes, that is an ignorant thing to think but to a freshly knocked up broad..I can see that being thought about me. I hope and pray no one I know has to go through anything like we have, but I can't say I would do anything differently. It's in our nature to want healthy "normal" children and when a defect or syndrome is found, it's normal to mourn what could have been. I did and still do. But I also know parents of "normal" children don't know what it means to fight for a baby you've haven't even met yet, to plea with God that your baby is still alive because you haven't felt a kick in ten minutes, to BEG you can just get through the day without rushing to the hospital. I have never been so strong as I am now, I have never felt such love or been so thankful. Naysa has brought so many good things to our lives, even more so BECAUSE she was born with an encephalocele. The lessons I've learned, the people I've met, relationships strengthened...I couldn't have asked for anything more.