Wednesday, March 9, 2011

New Neurosurgeon

We walked into the exam room to find the walls covered in awards and certificates with the name "Michael L. Levy MD PhD." Every year since 2001 he has been awarded "One of the best doctors in America" so, I was feeling pretty good about our choice in a surgeon from the start :) After waiting for him to finish up with his previous patient we were taken into his office to meet. When we walked in he was pretty absorbed in Naysa's ultrasound pictures on the computer cause he barely heard us sit down, lol. He introduced himself and so began the discussions. He pulled up the MRI images since those give a better picture of what we're dealing with and after a few minutes of silence and a puzzled look on his face, he said "I'm not really seeing any brain in there." This of course was completely confusing to all of us since we've been told by Maternal-Fetal Specialists and a Navy neurosurgeon that there was a small amount of brain involved. He looked through the images again and dissected them as much as he could with the software he had and said he believes the encephalocele may actually be something called a meningocele, which is basically just the fluid filled sack. He said the encephalocele didn't look to be located on the midline, which is where they are because that is where the neural tube comes together and fails to completely close. There is obviously a little something in the images but he seems to think it may not be exposed brain, but the "soft spot" that is being pushed upward because of an enlarged ventricle she has. There is no way to know anything for sure until she is here and can have her own separate MRI, ultrasounds, etc so we are still playing the wait and see game. He put no rush on surgery after she is born unless the cele starts to leak which can be risk for infection. He wants her to be as strong and stable as she can before he operates and have as many tests and as much imaging as he can to be sure there are no main veins or anything in the way of the surgery site. He will not be putting a graft or any foreign material to fuse with the bone. He wants whatever her body can do naturally to happen first and he seems pretty optimistic that her skull will grow grow back together fine within the first 8-14 months, if not he said we will discuss options then. Overall I am still confused but with only two more weeks left, I can wait and not dwell on everything. I feel good about this doctor and have faith that Naysa will fight whatever comes her way. I feel like I might have left some parts out so feel free to ask questions and it will more than likely create an "oh yeah!" moment :)

2 comments:

  1. If it is a meningocele, is that something that will just be drained? Either way, no brain is obviously a good thing. I'm praying that's the case. Your baby girl is a fighter. I can't wait to see how beautiful she is! <3

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  2. That is amazing news! Best wishes and many prayers for your little fighter!

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