Saturday, February 23, 2013

Oh, baby! ;)

  I can't believe it's been over a month since my last entry! Things have truly been busy for this little family. We are expecting baby number two! :D My due date is September 6th but will have a scheduled c-section the week of August 9th. When I had my c-section with Naysa they did two different cuts, the one on my stomach is horizontal...the classic "bikini cut" but the one on my uterus is vertical because that was the safest way to get Naysa out without rupturing her Encephalocele. All c-sections after a vertical cut must be done at 36 weeks and cannot chance going into labor as it is life threatening to both mother and baby. I'm excited but more nervous than I would like to be, for obvious reasons. We are just hoping these next few weeks fly by for that 20 week ultrasound and they tell us everything is okay, then I can finally breathe and enjoy this pregnancy. I am very excited for the great things having a sibling will do for Naysa's development, the studies of delayed children and typical siblings are astounding! Okay, now on to what you all read this for...the bug :)

   A few weeks ago we saw the other neurosurgeon at Rady's who works under Dr. Levy. I cannot even begin to describe the amount of restraint it took not to punch this man in the face, but we'll get to that in a minute. Dr. Levy recommended we see Dr. Meltzer because of Naysa's upcoming surgery to repair her Encephalocele and reshape her noggin, Dr. Meltzer has more experience grafting so I agreed to meet with him. He came in and shook my hand (I REALLY wish I could demonstrate the fake, awkward way her introduced himself) we sat down and began talking about her medical history, development, the usual. He asked if anyone had predicted where she would be developmentally and I gave the answer I always do "They have stopped hypothesizing about her future, no one has been right so far...as you can see she is alive and far from the 'vegetable' they told me she would be." To which he replied "Hm, well I believe you can predict a child's future development so I'm going to refer you to a specialist." At this point, I look at the nurse practitioner, Natalie who knows me well...after all, we've been going to this office since before Naysa was born. I look back at Dr. Meltzer and say "You can put in that referral but we won't be going." He dismissed my comment and continued to ask about her health, I told him she is in a great health and I do a lot a make sure she stays that way. What does he say next, you ask? That's wonderful, keep up the good work? Nope. He says "Yeah, she doesn't look like she's probably going to be with God anytime soon..." I'm sorry...WHAT!?! I felt my face flush and Natalie wrapped up the appointment, she knew shit was about to get real, and I love her for it. He said to follow up with him in 3 months and I laughed...I couldn't help it. He once again shook my hand with the same vibes he had walked in with and I took my girl and we left. We will stick with Dr. Levy, thank you!

   Yesterday, we finally got to see our amazing neurosurgeon to go over the CT results and discuss surgery. The 3D CT was incredible, it was so strange and amazing to see my girl's head like that...I feel it everyday but to actually to see her skull and how it's built was wild. *Pictures Below* The surgery date has not been set but we will see him back in April after we see Dr. Cohen, the Craniofacial surgeon who will reconstruct her head. It will be a two part surgery, until we see Dr. Cohen I'm not sure which will come first. One will consist of closing the gap in her skull with a graft, the other will be to round out her head as it is flat in the back and doesn't allow her brain to properly grow. I will keep you updated as these dates approach :)

   Now to the fun stuff :) Nay has been going to the Chiropractor for a little over a month now and I couldn't be more satisfied with the results! She tolerates tummy time much longer, is moving better and even beginning to make new sounds! She babbles like she never has before, she has regular bowel movements, sleeps better and has less spasms. I love love love our chiro and look forward to Mondays and Thursdays to help my baby feel free. She is always so relaxed and zen after an adjustment.


1 comment:

  1. That doctor is a JERK! Jerk isn't the word, but I don't want to write it here. WOW I'm floored and re-read that three times to make sure I read it right. I hope you gave him the finger on the way out. Great update about baby girl and your little one :)

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