Tuesday, April 10, 2012

Eye Doctor, Neurosurgeon, Pediatrician... oh my!


Lots of new updates over the past two days! I shall separate them for your convenience :)

Eye Doctor:
Yesterday we met with Dr. O'Halloran for our follow up from December. Her vision has improved yet again, yay! :D He wants to go ahead and do corrective eye surgery for strabismus. He was confident it would improve her vision even further and help her to focus so she isn't straining her eyes. The date is set for June 19th and is an outpatient procedure, she should be fully healed in about 6 weeks. Ready for the super creepy side effect? BLOODY TEARS! Yes...bloody tears. Meaning, if I go check on her in the middle of the night there is a chance she will have a bloody tear streaked face..AHHH!! not cool.

Last night I noticed Naysa's head was sunken in where the encephalocele was, she's been super irritable the past three days and she threw up. First thought of course is her shunt. I called the neuro office because I really didn't want to have to go into the ER unless he deemed it necessary. He told me just to keep an eye of her sleeping and temperature and made me an appointment first thing in the morning.

Neurosurgeon:
She had her check up next week anyway so that got cancelled since we went today instead. He showed me her scans side by side from before her shunt to the latest scan in February and the difference was incredible! ALL of the extra CSF is gone and her brain has grown!! God is good :D Her skull has grown a lot on it's own and he wants to see her back in three months to see if it has grown anymore before committing to bone graft surgery. He would like to see it grow as much as it can before putting her through another surgery, which I greatly respect.

Pediatrician:
We had a visit today with her medi-cal assigned ped. Nothing too exciting to report there since we just saw her PCM a few days ago.

The girl has also had a spout of seperation anxiety the past few days, on one hand I'm irritated and feel like my arms are going to fall off from all the holding her she makes me do, but on the other hand I feel excitement and relief she is going through something "typical" children do. Ahh the life of a SN mommy.

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