Monday, January 2, 2012

RIP Jeremiah


My heart is heavy and my eyes are tearful as I report the passing of yet another one of our precious cele babies. We all know you fought so hard sweet boy and no one blames you for being tired and wanting to go Home. You are such an amazing woman and mother Sierra, I know the decision was difficult but I truly believe you did the right thing and now Jeremiah is sleeping tightly in the arms of our Creator, uninhibited by any of his earthly handicaps. I take the loss of our cele kids personally, to heart...we have become a family. We celebrate each triumph, things that to parents of a typical child would be overlooked because it's "normal." We grieve together, we pray together, we love together...we ARE in all aspects, a family. The way our kids have been called Home so much lately is starting to scare me, it's impossible not to think "is she next??" I watch her every move, focus on her every sound to make sure nothing is out of the norm. I'm paranoid and nervous, thank God I go to the shrink again soon! Tonight I gave extra kisses, hugged her a little longer and squeezed her a little tighter because the reality is you never know if it's the last time you will be able to do so.

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